From Baltimore to Belgium, Yentli Soto Albrecht, PhD has spent the past year attending ALS and FTD conferences as a patient-scientist on a mission. This is a chronological account of every stop in her In Search of a Self Cure conference series.
View the LinkedIn post about the ESRF visit
Read the full article on LancasterOnline
Read the full article on SDLancaster
Watch the Fox29 video segment
Read the full article on philly.com
Patrick Weydt, Senior Physician at University Clinic Bonn · LinkedIn On the heels of #bonnbrain26 we were able to top off an extraordinary week at German Center for Neurodegenerative Diseases (DZNE) with the inaugural #DZNEALSLecture by #C9ORF72 carrier and scientist/clinician extraordinaire 👩🏻⚕️Yentli Soto Albrecht, PhD. It was a privilege and an inspiration to learn about…
AD/PD – Advances in Science & Therapy · LinkedIn #ADPD2026: Day 5 Highlights, Reflections, and Excitement from Copenhagen! 🌍✨ In the last recap video, Yentli Soto Albrecht, PhD, an MD-PhD student at the University of Pennsylvania, and Priya Suman, Ph.D., a neuroscience candidate at The Ottawa Hospital Research Institute, joined us to share highlights from…
Penn Medicine, University of Pennsylvania Health System · LinkedIn Yentli Soto Albrecht, PhD is an MD–PhD in training, a genetic carrier 95% likely to get ALS and FTD in the next few decades, and a patient advocate working to change her own future and the lives of others. With support from Penn, she’s advancing powerful…
AD/PD – Advances in Science & Therapy · LinkedIn #ADPD2026: Day 1 Highlights, Reflections, and Excitement from Copenhagen! As AD/PD™ 2026 kicks off, we’re starting strong with inspiring sessions and thought-provoking discussions. Hear from Baayla Dimitri Catharina Boon, a Research Associate at Mayo Clinic and one of the Junior Faculty Award winners. Also joining our…
“Eric Dane’s death is a reminder, all too painful, that ALS remains incurable.” Yentli reflects on grief, her father, and why she will never stop fighting for a cure.
Yentli Soto Albrecht, PhD, @searchforaselfcure joins the ALS United Mid-Atlantic GOALS Podcast to talk about her family’s genetic history with ALS and her personal mission to end the disease through research. In this episode, Yentli talks about what motivates her, what she’s learned, and how research can bring hope and motivation to all. Learn more…
A medical student at the University of Pennsylvania is on a special mission in the research lab that could save her life. Yentli Soto Albrecht’s battle is against ALS, a fatal neurodegenerative disease. She is a genetic carrier for a rare form of disease. It’s a race against time in the research lab for Soto Albrecht,…
Yentli is featured in Penn Medicine’s Threshold magazine (Fall 2025, pp. 11–13) and shares the video of her McCaskey Distinguished Alumni speech — poured out with grief, determination, and hope.
Target ALS · March 9, 2026 Yentli Soto Albrecht is an MD-PhD student at the University of Pennsylvania who brings a unique perspective to the ALS community as a scientist, a physician-in-training, and a C9orf72 expansion carrier. After losing her father to rapidly progressive familial ALS in 2024, she redirected her work toward neurodegeneration research…
The Rare360 Editorial Team · Feb 26 In rare disease, urgency is often discussed in abstract terms — pipeline acceleration, regulatory timelines, translational gaps. But for some, urgency has a date attached to it. Yentli E. Soto Albrecht, PhD, is an MD-PhD student at the University of Pennsylvania whose life and work converged in August…
“Today I returned to the same ALS clinic where my dad was diagnosed. The same exam room. But this time…” Yentli reflects on caring for patients at Penn’s ALS clinic.
Yentli’s creative nonfiction essay “Unreality & the Yellow Blouse,” published in Apostrophe and Ampersand Issue One: Firsts. Originally anonymous — now hers to claim.
A letter to herself: Yentli looks back at December 2024 — four months into grief — and tells that version of herself what the year ahead held. A year in review: hope.
“I don’t fear death itself. I fear dying the worst way imaginable: locked in my body with ALS.” Yentli reflects on losing her father and facing the same fate.